This educational conference will be held on Saturday,
November 7. The meeting is intended for parents, extended family members,
care providers, and all professionals including teachers, physicians,
nurses, and therapists who work with children and adults with Prader-Wili
syndrome. PWCF’s Board of Directors strongly believes that everyone caring
for a child or adult with Prader-Willi syndrome will benefit from attendance,
therefore Registration Fees have been kept low.
The Endocrine Perspective of Prader-Willi Syndrome from Infancy to
Adulthood
Michael Gottschalk, M.D., Ph.D.
This presentation will review the hypothalamic-pituitary hormone axis:
- Growth Hormone Deficiency
- Growth effects
- Metabolic effects
- Growth hormone treatment
- Sex Hormone Deficiency
- Undescended testes
- Delayed pubertal development
- Testosterone/estrogen therapy
- Insulin Resistance
- Diagnosis
- Diabetes mellitus
- Lipid abnormalities
Adrenal Hormone Deficiency: Fact or fiction?
Dr. Gottschalk is chief of pediatric endocrinology and diabetes at
UCSD and Rady Children’s Hospital. He has been a practicing endocrinologist
for over twenty years and is a member of the Prader-Willi Interdisciplinary
Clinic at Rady Children’s Hospital.
PWS Gastroenterological Issues
Ann Scheimann, M.D., M.B.A.
This presentation will provide state-of-the-art information about problems
related to the stomach and bowels in persons with PWS.
 Dr.
Scheimann is an expert in GI issues related to PWS. She is an Adjunct
Faculty and Director of the Prader-Willi Syndrome Clinic, Division of
Pediatric Nutrition and Gastroenterology, Baylor College of Medicine,
Houston, Texas; and Associate Professor, Division of Pediatric Nutrition
and Gastroenterology, Johns Hopkins Hospital, Baltimore, Maryland.
When 'Enough!' Isn’t Enough: Moving Beyond Limit Setting to Help People
With PWS Cope More Effectively With Frustration and Anxiety
Dawn Huebner, Ph.D.
As if the cards haven’t been stacked against her already, your sweet
little girl (or boy) has suddenly been hijacked by intense and seemingly
unmanageable feelings. Anxiety over simple decisions. Refusal to go along
with minor changes in plans. Frustration blossoming into rage. So you,
well versed in the need for strict control, click into a limit-setting
mode. Stop arguing with me. Stop picking at yourself. Stop asking me that.
Except it doesn’t work, because when it comes to managing feelings, ‘Enough!’ is
never enough. You (as parent or caregiver) can learn to conceptualize
your child’s problems differently, leading to a set of remarkably effective
techniques to implement on your own and, importantly, teach your child,
with the aim of fewer flare-ups and faster recoveries.
 Dawn
Huebner, PhD, is a clinical psychologist and author of the award winning
What to Do Guides for Kids series published by the American Psychological
Association. Her books teach children the skills they need to overcome
generalized anxiety, OCD, negative thinking, easily triggered anger, sleep
problems, and ‘bad’ habits. Known for her engaging style and her ability
to translate cognitive-behavioral techniques into language easily accessible
to parents and kids, Dr. Huebner is often interviewed by the national
media, including a recent appearance on the TODAY Show. Her books have
been translated into 12 languages, and are distributed worldwide. Dr.
Huebner maintains a private practice in Exeter, NH, working with children
ages 12 and under and their parents. She is a 1987 graduate of the University
of Michigan.
Dr. Huebner’s books will be available for purchase and book signing.
Or, visit www.dawnhuebnerphd.com to
order now and bring your book with you to the book singing.
Ask The Experts Panel
Michael Gottschalk, M.D., Ph.D. and Ann Scheimann, M.D., MBA
and Dawn Huebner, Ph.D.
Conference Schedule
Saturday, November 7
| 8:00 a.m. – 8:50 a.m. |
Registration & Check-In
Youth & Adult
Program Check-In
Exhibit Booths |
| 8:50 a.m. – 9:00 a.m. |
Welcome – Ken Knox, President
General Announcements – Lisa
Graziano, Executive Director |
| 9:00 a.m. – 10:30 a.m. |
PWS Gastroenterological Issues
Ann Scheimann,
M.D., MBA |
| 10:45 a.m. – 12:15 p.m. |
When ‘Enough!’ Isn’t Enough: Moving Beyond
Limit Setting to Help
People
with PWS Cope More Effectively with Frustration and Anxiety
Dawn
Huebner, Ph.D. |
| 12:15 p.m. – 1:15 p.m. |
Lunch & Booth Exhibits |
| 1:15 p.m. – 1:45 p.m. |
PWCF Business Meeting |
| 1:45 p.m. – 3:15 p.m. |
The Endocrine Perspective of Prader-Willi Syndrome from Infancy to Adulthood
Michael
Gottschalk, M.D., Ph.D. |
| 3:30 p.m. – 4:30 p.m. |
Ask The Experts Panel
Michael
Gottschalk, M.D., Ph.D.
Dawn
Huebner, Ph.D.
Ann
Scheimann, M.D., MBA |
|
