Prader-Willi Syndrome Support Groups
As of March 2008
 
Northern California
North Bay
Wendy Young
415-924-7025
 
Sacramento
Diane Kavrell
530-753-5928
 
San Luis Obispo/ Santa
Hope Liddiard
805-461-0191
 
Barbara/ Ventura Counties
       
Santa Clara/ Santa Cruz/
Elizabeth Kulkowski
408-776-3533
 
Monterey Counties
       
         
Southern California
Los Angeles County
Lisa Graziano
310-316-8243
 
Orange County
Angela Lucero
714-992-2550
 
 
Inland Region Area
San Bernardino County
Maria & Ken Knox
909-421-9821
 
Riverside County
 
Spanish Speaking
Mercedes Rivera
(Adults with PWS)
619-822-5742
 
Maria Knox
(Adolescents with PWS)
909-421-9821
 
Kilma Carrillo
(Infants and Children with PWS)
760-427-1100
 
On-Line Support

PWCF Online Information Sharing Group for Members. This online information sharing group is for PWCF members. To join the group, log to www.yahoogroups.com. In the search box under the heading "Join a Group" enter PWCFmembers. When the PWCFmembers group name appears, click and follow instructions to join.

PWCF Online Information Sharing Group for Professionals. This online information sharing group is for professionals working with individuals with Prader-Willi syndrome e.g., Regional Center caseworkers, residential staff persons, etc. To join the group, log to www.yahoogroups.com In the search box under the heading "Join a Group" enter PWSProfessionalsExchange. When the PWSProfessionalsExchange group name appears, click and follow instructions to join.

PWSA (USA) Online Support Group Ages 0-5:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support Group Ages 6-12:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support Group Ages Teens:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support Group for Siblings:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Spanish-Speaking Group:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support-Military Families:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support-Autistic Symptoms:   www.pwsausa.org Click Enter. Click Support
PWSA (USA) Online Support-for Persons with PWS:   www.pwsausa.org Click Enter. Click Support
     
Support Group Notes:
© 1999-2005 Prader-Willi California Foundation