| Additional
Prader-Willi Syndrome Resources |
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| Prader-Willi
Syndrome Association (USA) -
organized in 1975, Prader-Willi Syndrome Association (USA) is
dedicated to serving individuals affected by Prader-Willi Syndrome
(PWS), their families, and interested professionals. The office
is located in Sarasota, Florida and provides information, education,
and support services to members including a toll-free telephone
number for information and referrals; annual national conference
for families, professionals, and scientists; nationwide network
of local chapters, parents, and professionals, research funding
to expand knowledge and treatment options, representation at
the international level, a bimonthly newsletter; publications
and audiovisual presentations about PWS; a nationwide network
of local chapters, parents, and professionals; research funding
to expand knowledge and treatment options; representation on
the international level. Hospitals, physicians, and parents
from all over the world consult with PWSA (USA) with medical
emergencies and questions daily. |
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| California
Medical Centers, Clinics, Physicians Treating PWS |
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| Speech
and Language Resource and Assistance |
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Online
Information Sharing and Support Groups
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PWCFmembers
Information sharing group for California residents and
members of PWCF. |
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PWSA
(USA) eSupport Groups National information sharing
and online support groups organized according to child's
age:Ages Birth to 5 Years; 6-12 Years; Teens; Spanish
Speaking; Siblings |
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International
Prader-Willi Syndrome Organization International information
about PWS translated into various languages.
International Prader-Willi Syndrome Organization International information about PWS translated into various languages. [Move this info from under the UK Human Genome Mapping Project Resource Center => International PWS Organization - a consolidating body for all national PWS associations throughout the world. IPWSO is organized to improve the quality of life for all people with PWS and their families, with the stated goals of helping them realize their wishes, lead a life as normal as possible, and be in a position to achieve what is allowed by the constitution of their country. Information about PWS is translated into various languages, including Afrikaans, Chinese, Croatian, Danish, Dutch, English, Finnish, French, German, Italian, Polish, Portuguese, Romanian, Spanish, Swedish.
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| The
Arc's Home Page - the country's largest voluntary organization
committed to the welfare of all children and adults with mental
retardation and their families.
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