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PRADER-WILLI
CALIFORNIA FOUNDATION
Prader-Willi California Foundation (PWCF) is a non-profit, charitable
corporation established in 1979. The Foundation is an affiliate
of Prader-Willi Syndrome Association (USA), and is comprised of
parents, friends, and relatives of persons with Prader-Willi Syndrome,
as well as many dedicated professionals and care providers.
The mission of the Prader-Willi California Foundation is to provide
to parents and professionals a state network of information, advocacy,
and support services to expressly meet the needs of children and
adults with Prader-Willi Syndrome and their families.
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| OUR
ORGANIZATION |
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PWCF serves
all of California with a network of support persons located
throughout the state. |
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PWCF has
over 800 members. Membership is comprised of parents, relatives,
and friends as well as physicians, nurses, psychologists, social
workers, therapists, educators, social workers, and other interested
professionals. |
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All members
of the Board of Directors are parents or relatives or other
dedicated supporters. All are volunteers committed to helping. |
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PWCF works
in close cooperation with the national Prader-Willi Syndrome
Association (USA) to achieve our mutual objectives.
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| OUR
AIMS AND OBJECTIVES |
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Prader-Willi
California Foundation's vision is that people with Prader-Willi Syndrome
may pursue their individual hopes and dreams to the full extent of
their talents and capabilities and that we will help them achieve
their goals.
PWCF works hard to: |
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Protect
and promote the welfare of persons with PWS |
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Provide
education and support services to the families of persons with
PWS, as well as other care providers, extended family members,
and family friends |
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Communicate
and publicize information about the Syndrome to the general
public |
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Improve
professional awareness of the Syndrome and the use of state-of-the-art
treatment and management strategies |
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Support
professionals' commitment to continued research of the Syndrome
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Promote
the establishment and improvement of residential facilities
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Establish
and maintain a state-wide network that supports:
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Early
identification |
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Early
intervention services |
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Referrals
to appropriate resources |
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Coordination
with specialists for diagnosis, medical intervention and
treatment, therapeutic interventions and treatment, nutritional
management, and behavioral and psychiatric management
strategies |
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Educational
programs, workshops, in-service programs for parents,
care-providers, regional center caseworkers, educators,
and health care professionals |
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Advocacy
services and community awareness |
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Respite
services |
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OUR
APPROACH
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Education,
networking, and support family members of someone with PWS |
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Support
programs for individuals with PWS |
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Education
and training of regional center personnel, social workers, physicians,
therapists, and other professionals |
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Establishment
and maintenance of a database of persons with PWS, families,
care providers, professionals, and other available resources
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Vendorization
of residences for out-of-home placement |
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Support
and enhancement of other residential programs for persons with
PWS
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| FUNDRAISING |
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| PWCF depends
wholly on private contributions and dues for its support. PWCF
is a non-profit 501(c)(3) organization, and donations to PWCF
are tax-deductible as a charitable contribution. |
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| PWCF invites
your support of and participation in our awareness, fundraising,
and other special events and activities. |
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