What’s New & Upcoming Events

Visit this page frequently to keep informed of the latest events, new research opportunities, advances in research, or any other newsworthy items.

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14th Annual Walking for Prader-Willi Syndrome Awareness Events

Don’t miss the fun!

Saturday, April 26 – Central California

Sunday, April 27 – Southern California

Sunday, May 4 – Northern California

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IEP S.O.S.

Saturday, April 19, 2014  10:30 am – 12:30 pm  Support for Families of Children with Disabilities, 1663 Mission Street, 7th Floor, San Francisco. What do you do if you disagree with an item on your child’s IEP? What should you bring to your IEP meeting to be prepared? In this workshop you will learn how to navigate the special education system so that you can overcome any new obstacles you may face in your child’s educational future. By the end of the training you’ll have your own personal IEP binder filled with information that you can use at your next IEP. Bring your child’s current IEP to this interactive workshop. Presented by Roger Goatcher.

This program is free to PWCF members. $35 for Non-PWCF members. Suggested $25 donation gratefully accepted.

RSVP   info@pwcf.org   310-372-5053

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PWS Behavior Management Training: Especially for Parents, Extended Family, and Professionals Serving Persons with PWS

Thursday, May 29, 2014  6:00 pm – 9:00 pm  Regional Center of Orange County, 1525 N. Tustin Avenue, Santa Ana, CA 92705

This Training Session is sponsored by PWCF, OCRC, and Comfort Connection Family Resource Center. Lisa Graziano will present valuable information about how to better manage the behavior of persons of all ages who have PWS including:

  • Understanding the PWS Hyperphagia Food Drive
  • Understanding How Children & Adults with PWS Think
  • The ABC’s of PWS Behavior Management
  • The Principles of Food Security
  • Collaborative Problem Solving Contracts
  • Rewards, Incentives, Punishment & Natural Consequences
  • Excessive Talking, Questions, Skin Picking & other Obsessive-Compulsive Behaviors
  • A Word or Two About Social Relationships
  • When Does One Think About  Medication?

This program is free. Suggested donation $35.   Click here for flyer.

RSVP   info@pwcf.org   310-372-5053

Spanish Interpretation Available with RSVP by May 26 / Interpretación en español disponible con RSVP por 26 de mayo

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2014 Support Group Meetings

Southern California: 2:00 pm-4:30 pm  BCHD Health District; 514 N. Prospect Avenue, Redondo Room (lower level/bottom floor), Redondo Beach.

RSVP for childcare for ages 12 and under: 310-372-5053

Northern California: 10:30 am-1:30 pm Support for Families of Children with Disabilities, 1663 Mission Street, 7th Floor, San Francisco.

  • Saturday, January 25
  • Saturday, April 19 – IEP S.O.S presentation by Roger Goatcher
  • Saturday, September 20 – PWS Behavior Management presentation by Lisa Graziano
  • Saturday, November 15

RSVP for Childcare: 415-920-5040 x 135

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2014 PWS Camp Session: June 19 – 24

PWCF’s PWS Camp exclusively serves persons with PWS age 8-65. Camp is held in cooperation with Easter Seals Camp Harmon  and is located in beautiful Boulder Creek, CA, just outside of San Jose.

Click HERE to Register!  Space is Limited! Please know that registration does not guarantee your reservation.

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Therapeutic Interventions for the Child with PWS is now available. Written by Janice Agarwal, PT, CNDT, physical therapist and  parent of a wonderful young man with PWS, this book is an invaluable resource to parents and therapists alike. Order directly from PWSA (USA).

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