Visit this page frequently to keep informed of the latest events, new research opportunities, advances in research, or any other newsworthy items.
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2013 Walking for Prader-Willi Syndrome Events!
April 7 · Griffith Park · Los Angeles
April 27 · Woodward Park · Fresno
May 4 · Crissy Field ·San Francisco
New! Virtual Walk · April thru May
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2013 Support Group Meetings
Los Angeles Area: January 6; April 14; July 7; October 6
Bay Area: January 26; April 27; September 21; November 16
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PWS CAMP! June 20-25, 2013 at Easter Seals Camp
Harmon in Boulder Creek, CA. Exclusively serving persons with PWS ages 8-65. Cost is $726; PWCF members are eligible for a $226 scholarship. Space is limited! Registration is now open. Note that registration does not guarantee participation. Complete required PWS Camp 2013 Forms by May 1. Download travel and hotel information.
Prior years’ programming has included a campfires, daily swimming, arts & crafts, a hike, basketball, quiet time, relay games, horseback riding, horse-drawn wagon ride, a dance, and the best camp counselors! Onsite male and female nurses administer medications. Staff to camper ratio is 3:1, with 1:1 available. Menu is healthy low cal/low carb and exceptionally delicious, with access to food is strictly secured.
Last year PWS Camper Whitman “had a FANTASTIC time, the best EVER. He enjoyed his cabin-mates, counselors, and all the activities. He was happy about the daily snacks and the delicious desserts, and even lost 3 lbs during camp week – wow! He’s been on the phone with new friends he made at camp.”
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2nd Annual Putt for Prader-Willi Syndrome Charity Golf Tournament
Saturday, June 15, 2013
Windsor Golf Club, Windsor, CA
Gather your friends, family and co-workers for a fun afternoon of golf. The event will feature a Putting Competition and 18-hole golf tournament, 4-person scramble with a shotgun start. Awards given for top 3 finishing teams, longest drive, closest to the pin, and more.
Family members and those unable to participate in the golf are encouraged to join the fun afterwards. Fun activities for the kids start at 5:00 p.m. followed by a Silent Auction and Dinner from 5:45 p.m.
Register Now! Tell a Friend! Make a Donation! Print Flyer
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PWS Family Night at the Galaxy
L.A. Galaxy v. Vancouver Whitecaps FC
July 20, 2013 at 7:30 p.m.
Home Depot Center, Carson, CA
Autograph Session After Game!
Tickets $25. Portion of proceeds benefit PWCF.
Call PWCF to order your tickets today! 310.372.5053
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A brand new publication,Therapeutic Interventions for the Child with PWS is now available. Written by Janice Agarwal, PT, CNDT, physical therapist and parent of a wonderful young man with PWS, this book is an invaluable resource to parents and therapists alike. Order directly from PWSA (USA).
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