For Parents

There is a great deal of information available to parents and care providers of persons diagnosed with Prader-Willi syndrome.  Families and professionals are encouraged to learn as much as you can about medical and therapeutic treatments and how to manage the symptoms associated with PWS.

As you gather information from this and other PWS sources, you are encouraged to connect with other parents, care providers, and professionals who have walked where you’re now walking and can share their wisdom and insights.

You are not alone.

PWCF maintains online and in-person Support Groups for parents and professionals.

PWSA (USA) maintains several yahoo support groups for parents, siblings, relatives, etc. which are all listed here: PWSA Email Support Groups

Additional Reading:

When Your Baby is in the NICU

Laughter through Tears: Creating a Strong, Supportive, Healthy Marriage and Family Handout

Does a Child with Disabilities = A Disabled Marriage?

Endocrine Health Care Providers Referral List

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