Prader-Willi California Foundation (PWCF)

Since 1979 PWCF has been dedicated to supporting people with PWS, their families, and the professionals who serve them. PWCF is funded by donations, grants, membership dues, and events. We invite you to join us.

If you are a parent whose child has recently been diagnosed with PWS we suggest you begin by clicking the “For Parents” tab at the top of the page.


Annual General Education Meeting
Inspiring Hope Ι Renewing Passion
November 8, 2014
Marriott Santa Clara 
just outside of San Jose

9:00 a.m. – 5:00 p.m.

Hear Learning Expert Cynthia Tobias share her philosophy on how to succeed in life with a strong-willed child. Her message is meant for people of all ages… the mind of a strong-willed child looks different at every age – young or old.

Janalee Heinemann, M.S.W., Director of Research and Medical Affairs at the Prader-Willi Syndrome Association (USA), will bring us up-to-date on the world’s research related to Prader-Willi syndrome.

Ann Scheimann, M.D., MBA, Gastroenterology and Nutrition Inflammatory Bowel Disease Center at Johns Hopkins Children’s Center, is a specialist in GI issues that affect persons with PWS. She will share the latest GI management and treatment strategies.

Concurrent Youth & Adult Program will provide persons with PWS of all ages and their siblings a fun and safe day.

Download or Print the PWCF 2014 Conference Brochure and Registration Form

Registration Now Open! Mail or Fax Form 

Conference Registration
Registrant Name/s
Name/Age of YAP Participants

Overnight Hotel Room Discount Rate Extended thru Friday November 24!

Reserve your room at the beautiful Marriott Santa Clara today! Call 408-988-1500



 ASICS 30th


We’re happy to announce that PWCF has once again been selected as an official charity of the 2015 ASICS LA Marathon!

Download the 2015 ASICS LA Marathon Flyer,  or visit the LA Big 5K or LA Marathon event pages for registration details.

Follow the TeamPWCF Facebook page.


Rady’s Children’s Hospital is now recruiting for the Beloranib stage 3 trails and the University of California, Irvine is currently recruiting for two new clinical trials

See our What’s New page or Become a Research Participant page for details


Click for Support Group Meeting Dates

Click to See Upcoming Events 

Get Involved – Join a Committee

Prader-Willi California Foundation

Read in Spanish